Thought I was finally making progress... My spine specialist, Orthopedic Specialist and Neurologist were all working together! They felt I needed to see a neurosurgeon... Dr. B. Lee... Has great credentials!
My first appointment with him was extremely thorough. We discussed all my symptoms, What treatments I had had so far, he looked over all my mri's and x-rays. He discussed my environment and my work habits past history.....it was a two and a half hour appointment. He felt the Chiari malformation definitely was a corporate for everything going on but he wanted to be sure before going forward with decompression surgery. He sent me to see an ENT and a Specialized optometrist...all the while I swear my head and body aches have gotten worse!!
Dr.B.Lee is referring me to Johns Hopkins now.....test came back with mixed results and he wants me to see a Chiari Malformation Specialist before continuing treatment....I'm just so fucking frustrated. I know I shouldn't. be but I am. I didn't expect him to schedule surgery right away by the way he talked during my last visit but I just hate being passed on to another specialist... I feel like a fucking rag doll!! My whole fucking life is nothing but being a rag doll.
My mood is for shits.. I'm slipping further into my rabbit whole lately. Im finding it harder and harder to find any kind of relief or joy! Relationships are crumpling around me... I'm lost!
